Hello My Name Is Fibromyalgia

Hello My Name Is Fibromyalgia

A Poem by Jalaran DeVine



I bet you know me!
I'm an Invisible Chronic Illness.
I am now velcroed to you for life.
Others around you can't see me or hear me, but YOUR body feels me.
I can attack you anywhere and anyhow I please.
I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun?
I took Energy from you, and gave you Exhaustion.
Try to have fun now!
I also took Good Sleep from you and, in its place, gave you Brain Fog.
I can make you tremble internally or make you feel cold or hot when
everyone else feels normal.

Oh, yeah, I can make you feel anxious or depressed. too.

If you have something planned, or are looking forward
to a great day.
I CAN take that away. too.

You didn't ask for me. I chose you for various reasons:
That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse
and trauma.

Well, anyway, I'm here to stay!

I hear you're going to see a doctor who can get rid of me.
I'm rolling on the floor, laughing. JUST TRY!
You will have to go to many doctors until you find one who can help you effectively.
You will be put on Pain pills, Sleeping pills, Energy pills, told you are suffering from anxiety or depression,
given a Tens unit, get massaged.

I told if you just sleep and exercise properly I will go away, I
told you to think positively, you have been poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating your life is every day.

Your family, mends and co-workers will all listen to you until they
just get tired of hearing about how I make you feel, and that I'm a debilitating disease.
Some of they will say things like "Oh, you are just having a bad day" or
"Well, remember, you can't do the things you use to do 20 YEARS ago", NOT HEARING that you said 20 DAYS ago.

Some will just start talking behind your back, while you slowly feel
that you are losing your dignity trying to make them understand,
especially when you are in the middle of a conversation with a
"Normal" person, and can't remember what you were going to say next!

In closing, (I was hoping that I kept this part a secret), but I
guess you already found out. . . the ONLY place you will get any
support and understanding in dealing with me is with Other People With
Fibromyalgia.
 

© 2008 Jalaran DeVine


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Featured Review

I really liked this....just wish I could find a dr. that truly understands and not ones that keep wanting to send me to shrinks, or give me so many pills that I will be dope up and could give a crap any more about how I really feel. I have yet to find a good dr...so sad and depressing makes me want to give up but I won't. Looking in to support groups in the area and hope someone their can recommend a good dr....think it's my last hope as I'm truly fed up. Thanks for sharing another great write about FMS. PW

Posted 15 Years Ago


1 of 1 people found this review constructive.




Reviews

I really liked this....just wish I could find a dr. that truly understands and not ones that keep wanting to send me to shrinks, or give me so many pills that I will be dope up and could give a crap any more about how I really feel. I have yet to find a good dr...so sad and depressing makes me want to give up but I won't. Looking in to support groups in the area and hope someone their can recommend a good dr....think it's my last hope as I'm truly fed up. Thanks for sharing another great write about FMS. PW

Posted 15 Years Ago


1 of 1 people found this review constructive.


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Added on November 8, 2008